Comments on: The Invisible Boy

By: carrie

carrie — Mon, 02 Mar 2009 04:28:00 +0000

Here is the link to what I wrote, maybe someone here can help them too: http://www.stopscreamingimdriving.com/2009/02/hoping.html

Thank you again.

By: carrie

carrie — Mon, 02 Mar 2009 04:27:00 +0000

I feel like such a tool. I read your blog all the time and yet, Kyla had to point out to me after I wrote a post about my friend whose 12 month old son was JUST diagnosed with DMD and is seeking information/support/anything really, that this was the same diagnosis of your sweet nephew Tanner.

Sometimes me ol' brain just doesn't connect the dots.

I am so thankful that there are others whom I can refer my friend to, such as your sister and her organization - which may offer some solace since they are new to all of this and their son is so, so young. Only 12 months.

Thank you.

By: Kim/2 Kids

Kim/2 Kids — Wed, 11 Feb 2009 18:01:00 +0000

I love how honestly and tenderly you write about Tanner. My sister is 14 years younger than I am and when she was three she was diagnosed with Neurofibromatosis and a brain tumor. She was blind by age 5 and now at 25 has the mentality of a 7yo. I vividly remember when she became self-conscious about her disability. I remember having lunch with her at school, she was in the 4th grade, and I said hi to a boy who had been at her 8yo bday party. I can smell the room, hear the laughter of the other children and feel my sister’s embarrassment and it is almost 18 years later. I’ve always marveled at the strength of my mother. I now have my own children and my husband was diagnosed with Early Onset Alzheimer’s Disease three years ago. The reality is that we all just muddle through the unfairness of life and hope to come out the other side a little more empathetic and kinder towards others. Thanks you for writing so honestly.

By: TB

TB — Fri, 30 Jan 2009 01:17:00 +0000

The photos are stunning, as is the story. The thought of Tanner having to suffer any more than he already does truly brings tears to my eyes.

By: Anonymous

Anonymous — Thu, 29 Jan 2009 18:29:00 +0000

Just catching up on some of your blog entries & I read this causing me to cry in my lunch. Just thinking aloud here, but do they have access to a support group for Duchenne's Muscular Dystrophy? If he does not already know other children who have it, it may help to meet some & become friends with them. Just thinking aloud…

By: Anonymous

Anonymous — Tue, 27 Jan 2009 02:00:00 +0000

Your story brought tears to my eyes.
I have supported a child through Save the Children for many years but would increase my contribution to support more children in his community.

bmc1978[at]yahoo[dot]com

By: Mama Smurf

Mama Smurf — Mon, 26 Jan 2009 19:43:00 +0000

Just wanted to let you know that A close friend and neighbor of mine has MD and is also on a mission. I give to the foundation several times each year through her. Good luck on your mission. I wish you success.

By: Iheartfashion

Iheartfashion — Mon, 26 Jan 2009 14:24:00 +0000

What an incredibly moving post. I’m not commenting to enter the giveaway, but reading about Tanner inspired my to donate to the cause.

By: Rockin' Mama

Rockin' Mama — Mon, 26 Jan 2009 04:21:00 +0000

I have a neighbor who has never been married and has no living family nearby. She is an older woman. I so enjoy spending time talking with her but haven’t done it in so long. I want to reach out to her and visit and bring a meal and have her over for a meal and just make the fact that she is alone a little bit easier

jasonncaryn at yahoo dot com

By: Mom101

Mom101 — Mon, 26 Jan 2009 04:19:00 +0000

Don’t consider this an entry C – I want to pay it forward regardless.

But just wanted to tell you that he will never be able to hide completely; your words will make sure of that.