July 27, 2010
Every visit to the doctor, now, brings bad news. In the early days, there were reassurances and messages of hope – some boys make it out of their teens, there are ways to slow the deterioration of his muscles, he might stay mobile for a long time, he might still get to enjoy some of [...]
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July 9, 2010
Have I hollered enough about the joyfultastic awesomeness that is this? Have you heard just about enough about tutus and New York and walking and skipping and running and wishes and dreams and carpe-ing the diem? Do you have no soul? Then you might want to skip this post. I hope that you won’t, but [...]
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