Tanner

The Lonely Cry Of The Selfless Mom

March 25, 2011

The other week, my mom wrote about something that I’d been unable to write about: my sister’s struggle to cope as the single mom of a dying and disabled child, and the dark, difficult space of that struggle, and the breakdown that came when that space became too difficult to occupy. I’d been unable to [...]

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Madonna Of The Sharks

March 9, 2011

Or, The Adoration Of The Blessed Virgin By Charlie The Swordfish

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Stories Hard To Tell

March 2, 2011

For all my talk of the world-changing power of sharing our stories, there are some stories that I have trouble sharing, because they’re too hard to write about, or because I worry about the impact of sharing them, or because they’re not my stories, and even if I have permission to share someone else’s story [...]

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Things That Are Awesome, Random Wednesday In February Edition

February 9, 2011

Things that are awesome: 1.) Being asked to open Disney On Ice / Toy Story 3 On Ice – in a tutu – and knowing that a portion of ticket sales will be donated to Parent Project Muscular Dystrophy in Tanner’s name. I’m probably going to cry, which is going to be disorienting, you know, [...]

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You And I Were Meant To Fly, And, Also Tweet (On Wheelchairs And Internets And Raising Our Voices, Oh My)

January 19, 2011

Once upon a time, in an Internet far, far away – which is to say, 6 months ago – I tweeted about Air Canada. I tweeted about them a few times, actually – I tweeted that they’d broken my nephew’s wheelchair, and I tweeted that they were working to replace it, and then I tweeted [...]

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Going Far Ahead Of The Road

December 30, 2010

My eyes already touch the sunny hill. going far ahead of the road I have begun. So we are grasped by what we cannot grasp; it has inner light, even from a distance- and changes us, even if we do not reach it, into something else, which, hardly sensing it, we already are; a gesture [...]

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Bring Us Goodness And Light

December 20, 2010

I love Christmas. I love it with the fiery heat of a blazing winter fire and a million twinkling fairy lights. I love the sparkle and the twinkle and the plum pudding and the eggnog and the tinsel and the gift wrap and the stockings and the carols and the hymns and the stories, all [...]

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Use The Force

October 27, 2010

The best way, I find, to deal with existential angst, is to just throw yourself headlong into something completely overwhelming and avoid sleep and drink lots of coffee and talk really, really fast whoever approaches you about anything. (Hair stylist to me: “I love your hair color.” Me: “Oh yeah wow thank you no really [...]

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Her Hand I Held

October 21, 2010

When my sister was very young, she appointed herself my protector. It didn’t matter that she was two years younger: I was a shy, ashmatic child, gangling of limb and totally lacking in physical grace, whereas she was athletic and boisterous and tending toward ferociousness, and those qualities more than made up for our age [...]

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If Wishes Were Horses, I Wouldn’t Need Air Canada

October 15, 2010

This weekend I’m flying out west to visit Tanner and family, and to say that my anticipation is bittersweet is understatement in the extreme. I am, of course, thrilled to be seeing them, and to be seeing him, and, because I am making this trip to get things started on Tanner’s Biggest Wish Project, there’s [...]

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