...a life worth sharing and celebrating, and story worth being told.
Tanner is my nephew. He has Duchenne Muscular Dystrophy. He’s dying. There aren’t any words that can adequately describe how hard that is. That said, I do try to describe it, sometimes. And to share a little something of his life and struggle and his family’s life and struggle and all the beauty and the sadness that those contain, because it’s a life worth sharing and celebrating, and story worth being told.
I started writing about him over a decade ago; he was then younger than Jasper is now (Jasper wasn’t even born yet, which is something that Tanner delights in reminding Jasper.) He’s now a teenager, and still every bit as awesome, and even more heroic. If his story inspires you, consider donating to Parent Project Muscular Dystrophy.