Bad Is the New Good

Tanner

The Heart Is A Muscle (Pass It On)

January 31, 2011

From my sister: I read and reread the comments to all of my sister’s posts about Tanner. I do follow them but have never made one myself. I am a strong woman and a mother… I thought I knew what I was capable of, I thought I could beat my demons by pushing my body [...]

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You And I Were Meant To Fly, And, Also Tweet (On Wheelchairs And Internets And Raising Our Voices, Oh My)

January 19, 2011

Once upon a time, in an Internet far, far away – which is to say, 6 months ago – I tweeted about Air Canada. I tweeted about them a few times, actually – I tweeted that they’d broken my nephew’s wheelchair, and I tweeted that they were working to replace it, and then I tweeted [...]

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Going Far Ahead Of The Road

December 30, 2010

My eyes already touch the sunny hill. going far ahead of the road I have begun. So we are grasped by what we cannot grasp; it has inner light, even from a distance- and changes us, even if we do not reach it, into something else, which, hardly sensing it, we already are; a gesture [...]

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This Is Tanner

October 22, 2010

This is Tanner: Tanner is my nephew. He’s dying. There aren’t any words that can adequately describe how hard that is. That said, I do try to describe it, sometimes. And I try to share a little something of his life and struggle and his family’s life and struggle and all the beauty and the [...]

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Her Hand I Held

October 21, 2010

When my sister was very young, she appointed herself my protector. It didn’t matter that she was two years younger: I was a shy, ashmatic child, gangling of limb and totally lacking in physical grace, whereas she was athletic and boisterous and tending toward ferociousness, and those qualities more than made up for our age [...]

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We Don’t Need Another Hero

October 19, 2010

I love this boy. I can’t save this boy. Nor can I save his mother’s heart from breaking. Nor can I save my own. But I have to let go of this idea that I should be able to save anybody. I have to let go of the idea that anything short of wholesale rescue, [...]

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If Wishes Were Horses, I Wouldn’t Need Air Canada

October 15, 2010

This weekend I’m flying out west to visit Tanner and family, and to say that my anticipation is bittersweet is understatement in the extreme. I am, of course, thrilled to be seeing them, and to be seeing him, and, because I am making this trip to get things started on Tanner’s Biggest Wish Project, there’s [...]

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Buffy Only Fought Vampires

August 27, 2010

I like to think that I’m the sort of person who doesn’t take things for granted. I know how fortunate I am to have the life that I have; I know, too, that the terms and conditions of that life include no guarantees against frustration and sadness and pain and loss. I know, even the [...]

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We Are The World

August 12, 2010

When all was finally said and done, it wasn’t appearing on CNN in a tutu – nor appearing on CBC in a tutu, or posing in Central Park in a tutu, or watching as a limo slowed down on Fifth Avenue and the passenger leaned out the window and hollered – at me – hey, [...]

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Real Ballerinas Dance In High-Tops

August 11, 2010

We dance for laughter, we dance for tears, we dance for madness, we dance for fears, we dance for hopes, we dance for screams, we are the dancers, we create the dreams. — Albert Einstein (cf. the Tutu Story, and What Is Photographosophy?) (Photo credit: JenIsJen, who has posted other amazing #tutusfortanner photos at her [...]

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