August 2, 2010
This afternoon, I took 237 photos of myself in tutus. Red ones, black ones, yellow ones; with shoes, without shoes; with leotard, with tank tops; standing close to the mirror, standing as far away from the mirror as possible without making it look like the tutu wasn’t so much tutu as it was epic muffin-top… [...]
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July 27, 2010
Every visit to the doctor, now, brings bad news. In the early days, there were reassurances and messages of hope – some boys make it out of their teens, there are ways to slow the deterioration of his muscles, he might stay mobile for a long time, he might still get to enjoy some of [...]
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