July 27, 2010
Every visit to the doctor, now, brings bad news. In the early days, there were reassurances and messages of hope – some boys make it out of their teens, there are ways to slow the deterioration of his muscles, he might stay mobile for a long time, he might still get to enjoy some of [...]
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June 30, 2010
I’m struggling, a little. Maybe a lot. I’m not entirely sure why. Maybe it’s just me buckling under the weight of too many sad things. Maybe it’s that thing that happens when you realize that you’re not as strong as you thought you were, that you’re not invincible, that you can’t stop bad things from [...]
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