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28 Apr

This Narrow Valley

There’s a home for the elderly that Emilia and Jasper and I pass every day on our walks to and from preschool and junior kindergarten and ballet lessons and karate. Emilia calls the ladies who live there her ladies – “we need to wave to my ladies, Mommy!” –  and she waves and blows kisses to them when we see them sitting in their enclosed verandah, and, when they come out outside for their daily constitutionals, she stops for chats and hugs. They give her extra candy at Halloween. She thinks that they’re awesome. “Just like Grandma, only not so far away and also they give me candy instead of cake.” Which is an important difference, you know.

The other day, after passing her ladies and dispensing the requisite waves and kisses, Emilia asked this: “why are some grandmas in wheelchairs?”

“Because they’re older, sweetie, and their bodies aren’t working so well anymore, and they can’t walk as much as they used to, so they need help. Wheelchairs help them get around.”

“Are they going to die? Because their bodies aren’t working?”

“Not just yet, I don’t think. But yes, when people get much older, they’re closer to dying.”

“And when their bodies aren’t working they’re closer to dying too?”

This is what you get when death is a semi-regular topic in your household. “Yes, sweetie, when their bodies aren’t working.”

“Is Tanner going to die?”

Ah. Ugh.

24 Mar

Clockwatching, Redux

tannerToday, Tanner goes to the doctor. This is, in itself, nothing new – Tanner sees a lot of doctors – but today, he’s seeing the doctor so that they can start fumbling toward answers to difficult questions concerning when and how and how long. How long until his food needs to blended? Until he needs to be intubated? Until he can no longer sit up on his own? Until his lungs are compromised? Until he cannot breath on his own? Until my sister can no longer look after him on her own? Until, until…

The clock ticks so much louder now. Tanner’s condition is aggressive, relentless: his muscles are breaking down quickly, and as his muscles break down, so does hope.

18 Nov

Just Like A Prayer

I don’t believe in petitionary or intercessory prayer. I’ve written about my reasons for this at length, but it boils down to this: I don’t believe in, can’t believe in, a God who responds to such prayer. As I said some months ago, ‘why should God help us find a cure for cancer, and not for muscular dystrophy? Find one lost child, and not another? Help the Red Wings win while leaving children dying in sub-Saharan Africa? If God is a god who lets bad things happen, the only way that I can understand that is if the point of letting bad things happen is to compel us to cope with pain and heartbreak and evil ourselves, alone, to better understand those things. And that idea of a didactic God doesn’t square with a picture of God as a moody patriarch who dispenses favors to his children on the basis of who supplicates most fervently.’