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2 Apr

A Hypothesis Is A Wish Your Brain Makes

‘Mommy, I have a hypothesis.’

Emilia is on a science kick right now. ‘What kind of hypothesis, sweetie?’

‘It’s about Disney World.’

‘Okay. Do you want to tell me what it is?’

‘My hypothesis is that Disney World is where dreams come true.’

‘That’s a very interesting hypothesis.’

‘I think it’s a true hypothesis because Tanner wished that we could go to Disney World together and have a family holiday there, and we’re going, and that was his wish.’

‘That is excellent science, sweetie.’

‘But we haven’t actually tested the hypothesis, Mommy, because we aren’t there yet.’ You will have to imagine her exasperated tone here. Clearly, I don’t understand science.

9 Feb

Things That Are Awesome, Random Wednesday In February Edition

Things that are awesome:

1.) Being asked to open Disney On Ice / Toy Story 3 On Ice – in a tutu – and knowing that a portion of ticket sales will be donated to Parent Project Muscular Dystrophy in Tanner’s name. I’m probably going to cry, which is going to be disorienting, you know, what with me being under spotlights in a stadium while on ice skates and all. (I don’t actually know if I’m going to be on skates. I will be on ice, so it’s what you’d expect, but you never know. Maybe I’ll fly in on the Tinkerbell wire. That would probably be safer.) (You should totally come. And wear a tutu. And cheer, loud, and pretend to not notice if I do, in fact, burst into tears.)

2.) This photo.

5 Jul

And Her Heart Grew Three Sizes That Day

This weekend, my sister ran in a tutu for Tanner. Afterwards, she wrote this:

Wow. Life is a journey, a path that has been laid before us – to help us learn, love and grow. To push ourselves and just HAVE FAITH. In life and each other. I will readily admit, sometimes my faith falters… I think it does for everybody. Some days I am brought to my knees by grief. NOT because I feel sorry for myself or wish for a different life, but simply because I look at my kids and my heart swells and breaks at the same time. And I know many many parents face this and probably much worse than I do. I have the time. I can clockwatch, as my sister says. Though it may seem torturous, and some days it is, I am blessed with knowing now that life is moments. The here and now, not yesterday and not tomorrow. We have to cherish each and every breath we take. I have been taught that and have been blessed to make EVERY moment that I can of Tanner’s life be memorable and meaningful. I have at least that time for now.